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Provides information and education on Huntington's disease and the hospitals and doctors that specialize in its treatment. Public Education and Information More information:
- Offers referrals to resources, clinical care and services, community and social support, and more
- A disability attorney is available for consultation
Provides information on cancer, including research, clinical trials, prevention, risk factors, symptoms, early detection, diagnosis, treatment, and quitting smoking. Public Education and Information
Provides resources and support to individuals recently diagnosed with type 1 diabetes. Public Education and Information More information:
- Distributes a Bag of Hope and T1D Care Kit with relevant information and tools
Provides support, education, information, and referrals on kidney disease, organ donation, or transplantation. Helplines and Information, Public Education and Information More information:
- Offers tailored education programs on every stage of kidney disease and the transplantation process
- Hosts periodic seminars on kidney research and treatment in the National Capital Region
Provides information, referrals, and support for individuals living with obsessive compulsive disorder (OCD), hoarding, and body dysmorphic disorder.
Helplines and Information, Public Education and Information More information:
- Information available on the website, by mail, in quarterly newsletters, and other materials
- Funds research to better understand these disorders
- Holds annual conferences
Offers a year-long program providing information about pre-diabetes and how to change eating and exercise habits to lessen the chances of getting a diabetes diagnosis.
Public Education and Information More information:
- Classes held 4 times a year
Provides trained information specialists to answer questions about epilepsy and seizures. Helplines and Information, Public Education and Information More information:
- provides support, guidance, and referrals to national and local resources
- Assists individuals living with epilepsy, their caregivers and friends, and anyone interested in learning more
Provides education, support, and referrals for individuals with Tourette Syndrome. Public Education and Information, Support Groups More information:
- Includes meetings, referrals, literature, films, treatment, and research
- Provides presentations for organizations upon request
Offers medical care for basic health needs, including primary care, annual physicals, and chronic disease management. Medical Care More Information:
- Provides health education
- Performs wellness exams
Helps businesses, government agencies, and schools provide accessible information and services to the blind community. Public Health and Safety
Provides food allergy information, education, and referrals. Helplines and Information, Public Education and Information
Provides education, information, and resources on mood disorders like depression and bipolar. Helplines and Information, Public Education and Information More information:
- Includes treatment and support options
Offers centralized information and resource for individuals with neuromuscular diseases. Helplines and Information, Public Education and Information More information:
- Includes information on clinical trials, Care Centers, programs, research, advocacy, referrals, and more
Conducts a community awareness campaign to educate the public and advocate about epilepsy. Public Education and Information
More information: - Publishes a newsletter, operates an ID bracelet program, and offers school presentations - Co-sponsors a summer day camp for youth with developmental disabilities
Offers information on HIV and AIDS research, treatment, and clinical trials. Public Education and Information, Helplines and Information More information:
- Provides copies of federally approved treatment guidelines and information by mail
Provides information about hemophilia and other bleeding disorders. Public Education and Information, Helplines and Information More information: - Includes information on support groups
Provides information and referral services related to retinal degenerative diseases, including retinitis pigmentosa, macular degeneration, and Usher syndrome. Helplines and Information, Public Education and Information More information:
- Offers an e-newsletter on coping strategies, research updates, and Foundation news
- Hosts a bi-annual national conference
Provides programming and outreach to increase dementia awareness within communities. Dementia Education and Outreach More Information: - Offers dementia-related resources, education and support
Provides information and referral services related to inflammatory bowel diseases. Helplines and Information, Public Education and Information More information:
- Distributes printed materials on colitis, Crohn's disease, ulcerative colitis, and related conditions
- Coordinates an annual nutrition expo and community walk
- Hosts seminars featuring speakers on medical, psychological, and nutritional topics
- Offers support groups for patients and their families
Offers medical care for basic health needs, including primary care, annual physicals, and chronic disease management. Medical Care More Information:
- Provides health education
- Performs wellness exams
Offers information and printed materials on Down syndrome. Helplines and Information More information:
- Includes guides for new and expectant parents, caregivers, and a general brochure
Helps individuals access essential medical equipment for independence, safety, and everyday mobility. Financial Assistance More information:
- Equipment refers to wheelchairs, lifts, canes, and other tools that support daily living
- Advocacy can involve speaking, media, writing to Congress, panels, and sharing literature
Offers medical care for basic health needs, including primary care, annual physicals, and chronic disease management. Medical Care More Information:
- Provides health education
- Performs wellness exams
Educates the public on rare diseases and refers patients to resources for assistance and support. Helplines and Information, Public Education and Information
